#17 2021 Heart Warrior Half Marathon, part 2 of 2
|Pins from patients all over the world|
On New Year's Day, we had many amazing stories of motivation from people completing a half marathon for the first time, battling freezing rain, doing a relay on the treadmill with family, and simply kickstarting the year off right with some healthy steps. Some have even made it a weekly routine, coming back for a run/walk as a commitment on their calendar. Each of us have been connected by a Heart Warrior--they are in your family, circle of friends, or within your community.
|Team Laney in New Jersey|
"At our 20 week ultrasound, my husband and I found out that our daughter (and 6th child) would be born with HLHS. We were told that it would be a long road with a lot of ups and downs and that couldn't have been more true. Laney Grace Stoeckel was born in the Special Delivery Unit at CHOP on May 12th 2020. In the short 4 1/2 months of her life she had undergone 2 surgeries, 3 cardiac caths and a "creative procedure" (one that was done only 1 other time at CHOP). On Saturday October 10th, 2020 we got a call that no parent should ever receive. Despite everyone's best efforts, Laney had passed on. We are so thankful for all the nurses, doctors and staff and for everything that they did for our family. They are truly superheroes. Unfortunately, with COVID, Laney's, 4 brothers and her 1 sister never got to meet her in person. We would like to show our children that Laney's life, although short on earth, has changed lives."
As it's commonly said, they are called Heart Warriors because they will show you true courage and strength, and in turn, they will help you find your own. In life, and especially for many individuals with a CHD, it's uncertain where or when the fight will end. We named our son Noah, as he would have to be brave when faced with challenging waters and we, as parents felt pulled to be more obedient to God's calling. "Faith over fear" has been a mantra we have adopted.
For families affected by CHD and those facing other unique circumstances and struggles -- we are all connected. However, our human resilience helps us forge on! While it can be tempting to derail one's faith when faced with adversity, our faith gives us a renewed spirit, peace and purpose as we raise our Noah up knowing he is a child of God. We are constantly reminding ourselves that God is good, ALL THE TIME. Not just when things are easy, but especially when they are hard. As time passes, we get to witness the beauty of future generations and know that God has a purpose for all of us.
|Christian, Aron + baby K|